PHACS Data Request Form
The PHACS network is committed to data sharing to enable validation of published results and foster innovation or illustration of statistical and epidemiological methods to analyze complex data. The extensive historical and prospective PHACS database has the inherent potential for development of novel study designs and innovative analytic strategies to address challenges within the fields of perinatal and life-course epidemiology as well as in the analysis of high dimensional genomic, epigenetic, microbiome, and imaging data. If you are an investigator who would like to request data for validation of published research results or development or advancement of methods that allow for valid and efficient evaluation of health outcomes in people living with or exposed perinatally to HIV and their treatments, we ask that you begin the process by completing the fields below. We will contact you directly to follow up on your request within one month.
Please note that data may or may not be available from previously published manuscripts; data request approvals may depend on required resources for creating limited datasets or public use (completely de-identified) datasets and PHACS investigator plans for further analyses.
Public Use Datasets
Public Use Datasets - A set of public use datasets have been prepared for the Adolescent Master Protocol (AMP) and Surveillance for Monitoring ART Toxicities (SMARTT) studies of the Pediatric HIV/AIDS Cohort Study (PHACS) network, and are now available through the Data and Specimen Hub (DASH) repository maintained by the National Institute of Child Health and Human Development (NICHD). The AMP public use datasets include data submitted at the baseline visit and up through 2 years of follow up. Interested investigators and researchers can access these datasets at the following links:
AMP Dataset: https://dash.nichd.nih.gov/study/17510
SMARTT Dataset: https://dash.nichd.nih.gov/study/227210