Data and Specimen Sharing

PHACS Data Sharing and Repository Policy

Public Use Datasets

Public Use Datasets - A set of public use datasets have been prepared for the Adolescent Master Protocol (AMP) and Surveillance for Monitoring ART Toxicities (SMARTT) studies of the Pediatric HIV/AIDS Cohort Study (PHACS) network, and are now available through the Data and Specimen Hub (DASH) repository maintained by the National Institute of Child Health and Human Development (NICHD). The AMP public use datasets include data submitted at the baseline visit and up through 2 years of follow up. Interested investigators and researchers can access these datasets at the following links:

AMP Dataset: https://dash.nichd.nih.gov/study/17510

SMARTT Dataset: https://dash.nichd.nih.gov/study/227210

View the PHACS public use dataset announcement .

Request for data from a published PHACS article:

Some scientific and clinical journals require studies to make the data used in their published analyses available at investigator request. The PHACS network supports such data sharing practices for published articles in journals that have this requirement. If you are an investigator who would like to request data from one of our publications that falls into this category, we ask that you begin the process by completing the fields below. We will then contact you directly to follow up on your request within one month.

Please enter your information.

*All fields with an asterisk are required.

Requestor's Name:*

Affiliation (Department and University/Institution):*

Phone Number:*

Email Address*

Please enter information for the article for which you are requesting data.

Article Description:*

Title of Article:*

Journal Name:*

Year of Publication:*

Related to PHACS Protocol (check all that apply):

AMPAMP UpSMARTT

Please tell us about the nature and purpose of your data request below. Be as specific as possible, such as specifying the table or figure for which you are requesting data.

Please note that all data sets will be de-identified and may require the establishment of a data use agreement. Depending on the purpose and or extent of the data request, the PHACS leadership will determine whether it is preferable to provide the data to the investigator or to conduct analyses for the investigator if he/she agrees. For the latter, investigators would be required to submit a formal PHACS analysis proposal for approval, in accordance with PHACS policies.

Purpose of data request:*

Requested format for dataset(s):

SASCSVExcel

Thanks for your interest in data related to the PHACS Study. If you have questions about submitting this form, please contact the PHACS Data and Operations Center at phacs_datarequest@fstrf.org.

Data and Specimen Sharing

Public Use Datasets

Request for data from a published PHACS article:

Please enter your information.

Please enter information for the article for which you are requesting data.

Introducing the PHACS Member Area (BETA)