• Contact Us
  • Register
  • Sign In
PHACS PHACS
  • Home
  • About Us
    • Mission and Values
    • Leadership
    • Our Clinical Sites
    • Participating Organizations
    • Funding
    • Clinical Site Feature Profiles
    • PHACS Puerto Rico Hurricane Relief
    • Inspiration Hub
    • In Memoriam
    • Contact Us
  • Our Research
    • Studies
    • Support Cores
    • Working Groups and Task Forces
    • Resources for Researchers
    • The George R. Seage III Early Career Investigator Award
    • Emerging Research Pilots
    • Research Network Partners
    • Collaborate with Us
    • Participate in the Study
    • Non-Disclosure Agreement (NDA)
  • Findings
    • Publications
    • PHACS in the News
    • Infographics Series
    • Research Summaries
    • Resúmenes de las Investigaciones
  • Community
    • Adult Community Advisory Board
    • Peers United Group (PUG)/YACAB
    • Health Education Resources
    • PHACS Film Series
    • "Just the PHACS" Digest
    • Glossary
  • Contact Us
  • Register
  • Sign In
  • You are here:  
  • Home

Disclosure Wheel Workshop

Photo: YAHA Net Wall of Hands
Visit YAHA Net's Wall of Hands Photo: YAHA Net Wall of Hands

As part of the 2014 CAB retreat at the PHACS meeting, the CAB participated in an interactive workshop on disclosure. This workshop was developed by a team of HECC and CAB members, and the goal was to explore and normalize the spectrum of attitudes and beliefs about HIV disclosure and non-disclosure, particularly focusing on understanding the role of CAB members as advocates in the world. In the workshop, CAB members first anonymously rated their own comfort level (on a scale of 0 – 6) within different scenarios about disclosure.  For instance, scenarios dealt with disclosure within a family setting; inadvertently learning someone else’s status via a child or another caregiver; deciding how to respond to a friend’s uninformed and stigmatizing comments about HIV; having one’s status inadvertently disclosed to a child during a doctor’s appointment; and explaining HIV study participation to a boss when asking for the time off. The worksheets were then collected and re-distributed, so that each person was holding someone else’s anonymous answers. We talked about our reactions to each scenario as we moved around the room to represent different places on the spectrum based on the sheet we were holding. This workshop was an exercise in thinking about how each of us would feel when presented with various opportunities to act as HIV advocates, and comparing that to the range of other responses we were witness to. Our being spread around the room gave a very visual display of the range of attitudes and comfort levels, showing that there is no one “normal” or “correct” way to be an advocate, that both disclosure and non-disclosure are valid choices, and that no matter where we fall on the spectrum of comfort around disclosure, we are in good company. Some CAB members reported feeling more empowered in their own attitudes about HIV disclosure after this workshop, and several plan to use this exercise with their site CABs.  

Download Disclosure Wheel Workshop Materials

Disclosure Wheel Facilitator's Guide - Coming soon!

Disclosure Wheel Worksheet in PDF or Word Document formats.

Disclosure Wheel Numbers in PDF or Word Document formats. 

Community
Adult Community Advisory Board
Peers United Group (PUG)/YACAB
Health Education Resources
PHACS Film Series
"Just the PHACS" Digest
Glossary

Confidentiality Policy   |   Terms of Use   |   Powered by SiteRocket Labs

National Institutes of Health

Introducing the PHACS Member Area (BETA)